Down Syndrome Awareness

Putting an End to Down Syndrome

Hold up, don’t fret, for I am a Down Syndrome advocate!   There has been a lot of talk this past week about Down Syndrome, abortion and Putting an end to Down Syndrome in other countries.  Since I am a person who doesn’t follow the news, for reasons I won’t get into in this post, I won’t be able to state facts about the situation that is going on.  Of course, it’s not like the media actually states facts. 😉 I can share with you about what I’ve read in my Down Syndrome Community and from fellow moms.  I can also state with certainty the truth about Down Syndrome and the quality of life that our kiddos can and do have. My personal experiences seem much more qualified than the angry and negative people that are posting such awful things about Down Syndrome in the media.  Most importantly, you should know that God makes no mistakes.  He has a purpose and a plan for each of us.

Something you should know about me, I avoid negativity as much as possible which is why I haven’t said anything about what’s going on up until now.  But I felt compelled to address the subject, not to add to the negativity but just the opposite.  I believe it is my job and my purpose to educate others about Down Syndrome so that maybe by the time my daughter is old enough to be on social media, she won’t have to read the terrible things people are saying about her.

What’s going On?

So here’s the scoop, from my perspective.  Apparently there is a large number of people in Iceland, I believe, but also right here in the Good Ole United States, that believe that people with Down Syndrome are a burden to society, don’t deserve to get assistance from the government, have no quality of life and should be aborted with a positive pre-natal test.  So, I’d like to address each of these issues for those that are not educated on Down Syndrome.

Social media

Social media

A burden to society

I’ve come across people in my life who seem to be a burden to society but not one of them had Down Syndrome.  Again, I’m a positive person so I’m going to tell you how people with Down Syndrome are good for society.  People with Down syndrome actually contribute a lot to their communities.  Many adults with Down Syndrome actually go to college, have jobs, volunteer in their communities, are self advocates, and overall hard workers.  Are there people with Down Syndrome who do not work?  Um, yes, there’s also plenty of able bodied people without Down Syndrome that do NOT work.

To know a person with Down Syndrome is to know unconditional love.  They are able to teach us so much about life, love, happiness, kindness and how to live your life to the fullest.  My daughter loves with all her might at just 4 years old!  She does not judge.  She does not discriminate.  The people that she encounters in her day to day life, leave her, wanting to be better people.  That does not sound like a burden to me.

Government Assistance

I’m not going to go deep in to this subject because I know many people believe different things when it comes to this subject.  But there a few things that I would like you to just take into consideration and really think about.  I live in the United States of America. Last time I checked we were still one Nation under God.  As Christians, it is our duty to love one another as He loves us.  My opinion is that we help our fellow neighbors who can not help themselves.  It’s the Christian thing to do.  If you claim to be a Christian and are reading this, I just ask you to consider What Would Jesus Do?

The next thing I’d like you to consider is this:  What if it were your child?  As a parent of a daughter with Down Syndrome, we are planning for her future.  We have high hopes that she will live on her own, work, earn an income and be independent.  But we recognize that there is a chance that all of those things may not happen.  We are planning for her future.  Unfortunately not every child with Down Syndrome has a parent who is doing the same or even can do the same.  So, are we to just feed them to the wolves??  Are we to make them suffer for their parents shortfalls?  Throw them on the streets??  What would Jesus do?

No quality of life?

If you’ve ever seen a picture of my daughter and/or my family, you would know that this statement is beyond ridiculous!  First of all, who defines quality of life??  My daughter is happy, loves life, loves her brothers, her family and going to school.  Even if she is never able to hold down a job, does that mean that her life was in vain?!  Really?!  Most people with Down Syndrome live long, happy lives, a lot happier and more fulfilling than plenty of people who seem to be missing a chromosome.  Honestly, if you believe this statement than you need to wake up, go outside and step out of your bubble.  Enough said!

my loves

Aborted?!

This issue is not one of Pro life or Pro Choice.  It’s an issue of education.  We must educate more people on how wonderful Down Syndrome can be.  People only see the negative but there is so much more positive.  What if you were told at your gender reveal that your child is  never going to go to college, he will probably end up in jail, he’s going to be a real pain in the ass?  Would you abort?  None of us know before our child is born what they will become.  A blood test will never reveal that!

We must educate OBGYNs on how to tell parents that their child will be born with Down Syndrome.  When I was told by my doctor, it was an apology.  Really?!  You’re sorry that my child has Down Syndrome?  I’m not, not for one singe second!  The way that you receive that news has an impact on how you react to it, especially when it comes from a doctor!  “Well, if he’s sorry, it must be bad!”  It is 2017, it is time to get educated, people!

My guess is that if you are reading this, you’re probably not the problem.  It’s the closed minded ones that will see the title and choose not to read.  They are scared they may be proven wrong.  Chances are though, that you know one of these people.  YOU can help make a difference, you can educate! Share the wonderful things about Down Syndrome! Show the pictures of Stella and the wonderful life that she has.You have the power to help bring awareness and stop this hate.  Will you do it??

Stella